Last updated
04/05/2008
|
ISA mission:
A world that understands stuttering
Bill of Rights and Responsibilities of People Who Stutter
Preamble
Established in 2000, the Bill of Rights and Responsibilities for People who Stutter is a
joint project by people who stutter, professional clinicians and researchers. It provides a
framework for building a more humane, just, and compassionate world for the millions of people who
stutter.
In our society, speech is considered one of the most important means for interpersonal communication.
While other means, such as written language, may be superior at times in conveying the content of
messages, spoken language not only contains the content, but also includes information about the
speaker’s intent, emotions, personality, and perceptions. That is why people who read books still like to
attend readings by authors of these books, and why millions of dollars are being spend developing tools
that allow for automatic voice recognition systems and the incorporation of voice and images in
electronic communication.
Unfortunately, the window that speech provides on the speaker’s self, also can lead to stereotypical
perceptions of people with speech disorders that go well beyond their speech difficulties.
While spoken word is taken for granted by most, the use of spoken language is challenging for millions of
people who stutter around the world. It is estimated that approximately 1%, or 60 million, of the 6
billion people with whom we share this world, stutter. For many of these individuals, daily communication
is a constant struggle. For many of them, speech does not open doors but closes them for interpersonal,
academic and professional development and fulfilment. Despite advances in our understanding of stuttering
and its treatment, many people who stutter around the world do not have access to the services and
support they deserve.
This Bill is written to foster attitudes and actions whereby individuals who stutter are provided the
opportunity to fulfil their aspirations and to lead successful, productive lives. It recognizes the dual
responsibility of listeners and society to create the environment in which people who stutter can develop
their aspirations and talents and of people who stutter to advocate better understanding and to become
active partners in their own future.
A person who stutters has the right to . . .
- stutter or to be fluent to the extent he or she is able or chooses to be
- communicate regardless of his or her degree of stuttering
- be treated with dignity and respect by individuals, groups, groups, companies,
governmental agencies, organizations and arts and media
- publicly available and accurate information about stuttering
- equal protection under the law regardless of his or her degree of
stuttering
- be informed fully about therapy programs, including the likelihood of success, failure
or relapse
- receive therapy appropriate for his or her unique needs, concerns, and characteristics
from professionals trained to treat stuttering and its related problems
- choose and participate in therapy, to choose not to do so, or to change therapy or
clinician without prejudice or penalty
A person who stutters has the responsibility
to . . .
- understand that listeners or conversation partners may be uninformed about stuttering
and its ramifications or that they may hold different views of stuttering
- advise listeners or conversation partners if one needs additional time to
communicate
- participate in therapy of his or her own choice, and to do so in an open, active and
co-operative manner
- do whatever one can to overcome life handicaps that have occurred because of
stuttering, including developing a realistic appraisal of his or her strengths and weaknesses
and perhaps a healthy sense of humour about himself or herself
- regard and treat others who have, problems, disabilities, or handicaps with fairness
under the law and with dignity and respect, regardless of the nature of their
conditions
- be conscious that he or she has power to promote awareness about stuttering and its
ramifications
Updated on November 24, 2001
- The Bill of Rights and Responsibilities of people who stutter
is a strong statement regarding the human rights of the millions of
people who stutter worldwide. It also sets out responsibilities of pws
to be resolute in increasing understanding about stuttering, in the
creation of a just and compassionate world.
The Bill is the result of collaboration between two world-wide
international organizations, the IFA and the ISA. Luc de Nil and
Michael Sugarman spearheaded the work on the Bill; Ava Barbour of Barbour
Design New York, provided the superb art work; and the IFA and ISA supported
the efforts both spiritually and financially.
The Bill has direct relevance for ALL people who work with stuttering. Its
sentiments stretch beyond stuttering to provide a basis for improving
understanding of all people with communication disabilities. If YOU are
concerned about improving the quality of life of people who stutter, and of
people with communication disabilities, the Bill of Rights and
Responsibilities will serve you well.
The Bill of Rights and Responsibilities is sponsored
by:
-
The
International Fluency Association (IFA)
This international organization groups researchers, clinicians and consumers
with an interest in fluency disorders in children and adults. The IFA
organizes workshops and an international conference every three years, which
brings together professionals and consumers from around the world. The
Journal of Fluency Disorders is the official journal of the International
Fluency Association. The organization can be reached at
http://www.ruhr-uni-bochum.de/ifa/index.html
-
The
International Stuttering Association (ISA)
The ISA is the umbrella organization for national and international self help
groups for people who stutter. Its vision is a world that understands
stuttering and its mission is to represent all people who stutter. It
produces a biannual newsletter (One Voice) and can be contacted
on http://www.stutterisa.org/
For more information contact Michael Sugarman
at msugarman1@aol.com
Back to Bill of Rights and Responsibilities
|
Translations to other languages of
Bill of rights and responsibilities of People who Stutter
Esperanto
Hebrew (Requires Hebrew fonts)
Hindi
Messages:
-
We dream ...
... of a world that understands stuttering, where people who stutter will not feel the need to
hide their stuttering any longer, will not be misjudged as fools, psychopaths and figures of
ridicule, and that stuttering will not affect their lives negatively. More >>
-
A world that
understand stuttering, understands much more. Such world understands the meaning of tolerance.
Such world knows to accept a person the way he is.
This is a better world to all of us...
More >>
-
we consider a successful stutterer to be the person who has eliminated avoidance
behaviours, has much willingness to communicate in all situations, advertises that he
stutters, and may still have dysfluencies in his speech. More >>
How to talk with a person who stutter?
Many people who don't stutter are puzzled about what to do when talking with a person who
stutters.
Here are some useful links that address this interesting topic:
http://www.stammering.org/conversation
http://www.asha.org/public/speech/disorders/stuttering.htm
|
|