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ISA Board info
New ISA Board
On
the ISA Business
Meeting held on May 6, 2007 (during the
8th congress for People who Stutter in
Cavtat, Croatia) A new ISA board was
elected by the delegates of ISA member
associations.
The new board includes
the following members:
|
Name
|
Country |
|
John
Steggles
Dr Moussa Dao
Joseph Lukong
Suzana Jelčić-Jakšić
Thomas Krall
Benny Ravid
Masuhiko Kawasaki
Keith Boss
Michael Sugerman
|
-
Australia
- Burkina Faso
- Cameroon
- Croatia
- Germany
- Israel
- Japan
- UK
- USA |
The new board made the
following nominations:
MINUTES OF THE ISA
MEMBERSHIP MEETING
Sunday, May 06, 2007
Commencing at 10 AM
Hotel Croatia, Cavtat
Meeting Call to Order
ISA Chair Mark Irwin
called the meeting to order at 10:15 AM
and welcomed the delegates and guests.
After some opening
comments, Mark suggested that the ISA
Member Associations introduce
themselves. The following introductions
were made:
Ronald
Van Demosthenes
Netherlands
Per
Knudsen Danish Stuttering
Assoc. Denmark
John
Steggles Speak Easy
Assoc. Australia
Mario
Mevden Udruga Hinko
Freund Croatia
Masuhiko
Kawasaki Japan Stuttering
Project Japan
Moussa
Dao ABC Acion
Conre Burkina Faso
Joseph
Lukong Speak Clear
Assoc. Cameroon
Benny Ravid
Israel Stuttering Assoc.
Israel
Thomas Krall
German Stuttering Assoc. Germany
Markus
Preinfalk OSIS Austria
Judith
Eckardt NSA USA
Mark reminded the whole
group that one vote is obtained from
each ISA Member Association that is
present.
Mark introduced ISA
Advisory Board Members: Shinji
Ito, Japan; Mel Hoffman, USA; Anita
Blom, Sweden; Keith Boss, UK; Moussa
Dao, Africa; Thomas Krall, Germany;
Marlene Green, Canada.
Mark introduced potential
new ISA Membership Associations:
Ousmane Issa Bourkou
Sainta Chad
Joseph
Nsubuga Uganda
Prem
Kumar India
Zong-Shan
Li China
Indra
Shrestha Nepal
Dritan
Kici Albania
Mark gave a special THANK
YOU to the hosting Organizing Committee
for the Congress and the Congress Chair,
Suzana Jelcic Jaksic.
Approval of Minutes of the ISA Meeting
on February 4, 2004
in Perth, Australia. Motion Passed.
Update of Special Friends Membership
Group Status.
Keith Boss, UK, Member of the Outreach
Committee, presented a world map that
showed areas of the world that have made
contact with ISA. No Special Friends are
recommended at this time.
Board Recommendations for Honorary
Members:
None at this time.
REVIEW OF ISA ACTIVITIES
& BOARD OF DIRECTORS’ REPORTS
All reports were done
prior to the meeting and had been sent
via email to ISA Board Members, ISA
Advisory Board Members, and ISA Member
Associations.
| President’s
Report: |
Mark Irwin |
Report
accepted by vote. |
| Secretary’s
Report: |
Judith
Eckardt. |
Report
accepted by vote. |
| Treasurer’s
Report: |
Hermann
Christman |
Report
accepted by vote. |
| Website
Committee Report: |
Benny Ravid |
Report
accepted by vote. |
| Discussion:
Much need to update ISA
Member Assoc. Contacts |
| Outreach
Report: |
Keith Boss |
Report
accepted by vote. |
| Discussion:
Acknowledge Stefan Hoffmann.
Use more technology for
meetings and sharing keynote
speakers. |
| ISAD Report: |
Mark Irwin
for Michael Sugarman |
Report
accepted by vote. |
| Online Conf.
Report: |
Mark Irwin
for Michael Sugarman |
Report
accepted by vote. |
| 2005 Cameroon
Conf. Report: |
Joseph Lukong |
Report
accepted by vote. |
| Stuttering
Essay Contest
Report: |
Masuhiko
Kawasaki |
Report
accepted by vote. |
| Discussion:
14 essays had been received.
The winner will be announced
during the Congress. |
| International
Speech Project Report: |
Mark Irwin |
Report
accepted by vote. |
| Discussion:
Acknowledged Moussa Dao and
Anne-Marie Simon. |
| CD Rom
Report: |
Mark Irwin |
Report
accepted by vote. |
| Discussion:
Initiative to cross market
the CD Rom & Essay
Contest.
Winner would be announced
for ISAD. Purchase CD Roms
by Local Associations. |
| ONE VOICE
Report: |
Mark Irwin
for Albert Zhang |
Report
accepted by vote. |
ISA
MEMBER ASSOCIATION REPORTS
Genyukai Association
Japan Kunihiko
Ikeda
Indra
Shrestha Nepal
Stuttering Association*
Demosthenes
(Netherlands) Ronald
Van Drunen
Indian Stammering Association
* Prem Kumar
Israel Stuttering
Association Benny
Ravid
Speak Easy
(Australia) John
Steggles
*Not yet ISA Member
Associations
MEMORIAL:
Thomas Krall from Germany asked that 30
seconds of silence be taken for Konrad
Schaefers who died about 6 months ago.
Konrad who was from Germany was one of
the founders of ELSA and ISA.
NEW BUSINESS
Presentation of
Bids for the ISA Congress in 2010
China
Zong-Shan Li
India
Prem Kumar
Argentina
Withdrawn
Both Zong-Shan Li and
Prem Kumar were questioned about their
country’s ability to host the 2010 ISA
Congress. Questions involved
location, number of local associations,
financial support, translation
capabilities, and experience. A
vote from the Member Associations was
taken and Beijing, China will be the
location of the ISA 2010 Congress. The
Host group will be the China Stuttering
Association (CSA).
Mark introduced Willie
Boterill from the UK. She is President
Elect of the IFA (International Fluency
Association). She announced that the IFA
will meet in Brazil in 2009. The
possibility of IFA and ISA holding a
joint Congress in the future was
discussed.
Open to Floor Discussion:
| ISA Vision: |
A World that
Understands Stuttering |
| ISA Mission: |
To improve
the conditions of all whose
lives are affected by
stuttering in all countries. 13 items
are listed in the
Constitution. |
Motion 22 and Stuttering
Definitions: Mark Irwin gave a
powerpoint presentation and read the
public awareness statement. Later
following concerns expressed by Marlene
Green and Anita Blom, it became clear
that the time constraints would prevent
full discussion. Accordingly, a decision
was made to postpone further discussion
on this topic and allow more time for
consideration by ISA Member
Associations.
The need for an “ISA
Office” was discussed. Mark made
comments that it is his experience that
the ISA workload has developed
significantly over the last 3 years. In
his opinion, administrative
assistance for the ISA Chair will be
necessary to ensure further ISA
expansion.
Election
of a New ISA Board and Treasurer
The following present ISA
Directors remain on the Board:
Masuhiko Kawasaki, Japan; John Steggles,
Australia; Benny Ravid, Israel; and
Joseph Lukong, Cameroon. Michael
Sugarman, USA, was absent and was in the
vote.
Mark Irwin accepted
self-nominations for ISA Director and
names were written on the board/flip
chart. Mark told the group that we
presently had 9 Directors but that the
ISA Constitution permitted up to 11. No
one contested this
statement at the time. Eleven names were
self-nominated and Michael’s name was
added to the list. There was a paper
vote taken resulting in the elimination
of one person and at the close of the
meeting, 11 ISA Directors were elected.
It was later realized that the ISA
Constitution calls for a maximum of 9
Directors and that situation is now
under consideration by the ISA Board.
The following people are
the New ISA Directors: Dritan Kici,
Albania; Keith Boss, UK; Thomas Krall,
Germany; Suzana Jelcic Jaksic, Croatia;
Moussa Dao, Burkina Faso; and Prem
Kumar, India.
Michael Sugarman, USA,
will remain as an ISA Director.
Indra Lal Shrestha,
Nepal, will be on the ISA Advisory
Board.
A new ISA Treasurer was
not elected.
The ISA 2007 Business
Meeting was adjourned at 4:30 PM.
Judith Eckhardt
ISA Secretary
Mel & Ruth Hoffman,
Recorders
The following people
attended the ISA Business Meeting and
signed the check-in sheet:
Judith Eckardt
USA
Mel Hoffman
USA
Thomas Krall
Germany
Moussa Dao
Burkina Faso
Masuhiko Kawasaki
Japan
Yukichi Akamatsu
Japan
Yosimasa Sakata
Japan
Zung-Shan Li
China
Thomas Grevelhoerster
Germany
Mark Irwin
Australia
Per Knudsen
Denmark
Henrik Jensen
Denmark
Mariette Von Eekelen
Netherlands
Maria (Maartje) Borghuis
Netherlands
Richard Bourgondien
Netherlands
Ronald Van Drunen
Netherlands
Sybren Bouwsma
Netherlands
Benny Ravid
Israel
Keith Boss
UK
Manfred Fitzner
Germany
Prem Kumar
India
Indra Lal Shrestha
Napal
John Steggles
Australia
Markus Preinfalk
Austria
Katrina Zvonarich
Austria
Blank Koffer
Germany
Jiri Palica
Czech Rep
Jiri Mazoch
Czech Rep.
Herman Christmann
Denmark
OusmaneIssa BourkouSainta
Chad
Joseph Lukong
Cameroon
Shinji Ito
Japan
Kazue Shinji
Japan
Dritan Kici
Albania
Marlene Green
Canada
Mario Gotovac
Croatia
Joseph Nsubuga
Uganda
Gansou Gregoire
Benin
Konstantin Belov
Russia
Dina Lilian
South Africa
Matthias Losert
Germany
MEETINGS OF THE NEW ISA
BOARD
MAY 9, 2007
At 1:10 PM Mark Irwin,
Retired ISA Chair, opened a meeting of
the new ISA Board (10 present) to elect
Chair, Vice Chair, Secretary, and
Treasurer.
The results are as
follows:
ISA Chair:
Benny Ravid, Israel
ISA Vice Chair:
John Steggles, Australia
ISA Secretary:
Joseph Lukong, Cameroon
ISA Treasurer:
No candidate
May 10, 2007
At 11:40 AM, Benny Ravid,
ISA Chair, opened a meeting to discuss
formation of a Press Release for the 8th
ISA World Congress.
May 10, 2007
At 6:40 PM, Benny Ravid,
ISA Chair, open a meeting to discuss
VISIONS & TARGETS for ISA. Each
ISA Board Member and Advisory Board
Member was asked to present.
Judith Eckardt, Recorder
Apr 20, 2007
The following is a NON OFFICIAL issue of
the "Public Awareness Message".
This issue was approved by ISA board
for wider consideration by ISA member
associations.
It will be discussed on the ISA
membership meeting in Croatia on May 6,
2007.
Public Awareness Message
Stuttering –What is it?
Stuttering, (also known as
stammering) is a disorder involving
the production of free flowing speech.
While the term has
commonly been associated with
involuntary syllable repetition,
it also includes the word and phrase
repetition,
prolongation of sounds and the
abnormal hesitation or pausing before
and/or during speech in which the
individual is unable to produce words or
sounds to varying degrees, referred to
as speech blocking.
The ISA wishes to
highlight that a complete understanding
of stuttering needs to incorporate more
than the listeners perspective but also
account for the speakers experience.
Consequently the ISA board promotes the
terms Stuttered Speech Syndrome
(negative feelings, attitude and
behaviour) and covert stuttering
(word avoidance, substitution and
circumlocution) to clarify discussions
about stuttering and its effects.
Cause
The cause of stuttering
is unknown although a hereditary factor
has been identified as it tends to run
in families.
Stuttering is generally
not a problem with the physical
production of speech sounds or putting
thoughts into words. Despite popular
perceptions to the contrary, stuttering
does not affect and has no bearing on
intelligence. Apart from their speech
impairment, people who stutter are
generally normal in every other way.
Anxiety, low self-confidence,
nervousness, and stress therefore do not
cause stuttering, although they are very
often the result of living with a highly
stigmatized disability.
Variable Effects
It is
clear that this disorder affects
different people in different ways. Some
experience it as frequent word
repetitions or prolongations especially
during periods of heightened anxiety and
describe it in terms of being just a
minor inconvenience in the free flow of
speech. Others experience it as a
complete blockage or cessation of the
ability to speech.
Speech block
stuttering is
generally accompanied by habitual
struggle behaviour associated with
efforts to release the speech block.
Individuals afflicted in this way can
experience the disorder as a major
disability in not only their efforts to
speak to other individuals but also as
something that can affect their whole
experience of life itself.
While stuttering is said
to affect about 1% of the population
some individuals are able to hide their
speech blocks through word and situation
avoidance and circumlocution. This form
of stuttering has been referred to as “covert
stuttering” due to its deliberately
hidden nature. The covert stutterer’s
greatest fear is how
others may judge them if they happen to
lose control while speaking and
experience a speech block. Many are
reluctant to admit to anyone that they
have any stuttering behaviour.
The emotional reaction of any individual
to the stuttering often constitutes the
most significant aspect of the disorder.
It is important that family, friends,
relatives, work colleagues and the
public in general understand that
much of what constitutes stuttering and
more particularly “speech blocking"
goes much deeper than the dysfluent
speech that the listener hears.
This includes such
things as sound and word fears,
situational fears, fears associated with
negative judgment by others.
Stuttering can lead to what some are
calling “Stuttered Speech Syndrome”.
Symptoms of this include increased
dysfluency, a feeling of loss of control
of speech, associated high anxiety or
panic, depression, low self-esteem,
social phobia and confusion over issues
of personal identity.
Variable Severity
The severity of
stuttering can vary greatly for any
particular individual and can be
specific to certain words and situations
e.g. talking on the telephone, ordering
in a restaurant, speaking to an
authority figure. Many individuals have
a problem in saying their name when they
have to introduce themselves. There are
a small percentage of people who have
severe blocking on almost every word, in
almost every situation. These people are
generally less anxious about their
stuttering than those who block
infrequently as the latter group are
uncertain when stuttering might appear.
This phenomenon highlights the need to
regard the severity of stuttering
as independent of the severity of
Stuttered Speech Syndrome. A person
with apparent infrequent stuttering may
be severely affected by Stuttered Speech
Syndrome while the converse can also
apply.
Therapy
There
are many treatments, devices and speech
therapy techniques available that, to
varying degrees, can help some people
who stutter to control or reduce both
the problem of dysfluency itself (stuttering) and
of negative reactions to it (Stuttered
Speech Syndrome). The
ISA highlights the value of self-help
and support groups in this process.
Nov 14, 2005
Stuttering as a Disability –the
controversy.
By Mark
Irwin - ISA Board Chair *
“Dr. Mark Irwin is the
Board Chair of the International
Stuttering Association, the umbrella
organization for national stuttering
self-help and support groups from
throughout the world. He has also
previously served as President of the
Australian Speak Easy Association and
continues as a member of its national
council. He is a dentist in private
practice in Adelaide, Australia.”
Stuttering is a legally
defined disability in many countries of
the world. Even so to call stuttering a
disability can provoke a strong negative
reaction in both SLP’s and people who
stutter (PWS). Why would this be so?
Objections to describing stuttering as a
disability involve one or more of the
following arguments:
1. Disability is not the right word.
2. Some people who stutter do not
choose/want to see themselves as
disabled.
3. The label disability encourages the
victim mentality.
The International Stuttering
Association, the umbrella organization
for national self –help and support
groups throughout the world, recently
debated this question, confirming its
recognition of stuttering as a
disability. The rationale for this
decision follows:
1. Is disability the right word?
This issue relates to the episodic
nature of stuttering, its situational
specificity, differences in how its life
impact is perceived by sufferers, as
well to the fact it can be ameliorated
by therapy. Consideration of this leads
to the question is there another word
that better describes stuttering?
Traditionally there have been two other
words associated with disability
– impairment and handicap. The
distinction between them has been
described by American SLP’s Scott Yarus
and Bob Quesal, among others, in the
following manner: Impairment refers to
the stuttered speech patterns,
disability describes the communication
difficulties, and handicap describes the
impact the communication difficulties
have on achieving life goals.
With stuttering, of course, the extent
of the communication difficulty can be
more than just the observable speech.
The communication difficulty is also
affected by the speaker’s anticipation
of, and/or reaction to, the stuttering
behaviour. So disability can still exist
in spite of only a minor observable
impairment and minimal handicap. However
these distinctions are obviously subtle
and confusing. The same issue affects
accurate descriptions of many other
disorders besides stuttering. In 2001
the World Health Organization responded
to this by re-evaluating its previous
International Classification of
Impairments, Disabilities, and
Handicaps, in favour of a new framework
known as the International
Classification of Functioning,
Disability and Health. Without going
into a full description of the impact of
this change, (see Yarus and Quesal,
Journal of Communication Disorders 37,
2004 ) ,one obvious implication as seen
by the change in title, is that the
words impairment and handicap have been
devalued leaving disability as the
general descriptor.
In addition to this it is necessary to
consider the use of the word disability
when applied to what is known as the
“disability movement”. This movement is
becoming very powerful as previously
disadvantaged members of society seek
attitudinal and legislative change.
There is no question that some pws have
been disadvantaged by their stuttering,
(e.g. unable to obtain a job because of an
inability to speak well under the stress
of an interview), and need these matters
to be brought to the attention of
authorities. Again disability is the
right word to describe stuttering if
stuttering is to be supported by the
disability movement.
2. Some pws do not choose/want to see
themselves as disabled.
Canadian SLP Ann Meltzer reported a
survey in which she asked pws to comment
on this question “Is stuttering a
disability.” The majority responded
negatively to this statement. As a
result she argued that “whether a person
is disabled by stuttering or wants to be
recognized as having a disability/ being
disabled, is an individual choice.”
A response to this statement leads to a
debate on the semantics of the
previously discussed impairment,
disability, handicap definitions. It
could also be argued that the same
people who are not happy to see
themselves as having a disability are
also not happy about seeing themselves
as people who stutter. In other words
there is a lot of shame, embarrassment
and denial for pws. Dealing with this is
the major role of self help groups, and
of course is regarded by many as a
foundation stone for successful therapy.
As expressed on related matters by
popular TV psychologist Dr. Phil McGraw,
“you can’t change what you don’t
acknowledge.”
3. Labelling stuttering a disability may
encourage a victim mentality.
This of course relates to the issue
discussed above. But it goes further.
That is because pws have a legally
defined disability they may be entitled
to concessions that encourage them to
stay dysfluent. They may also fall into
the trap of using their stuttering to
receive sympathy and support they feel
they would not otherwise get. In other
words there is a disincentive for pws to
seek therapy or respond positively to
it.
Most commentators would agree this is a
possibility, but this position also
assumes therapy could be effective for
everyone who stutters. Clearly this is
not the case. Many pws have had years of
therapy and still remain relatively
dysfluent. Another question raised here
is “just how hard should one have to try
to become fluent?” An analogy is to
expect everyone who joins a golf club to
keep on practicing until they can play
like Tiger Woods. This is obviously an
unrealistic position. Some may have the
talent, capability and luck as well as
access to the right coach to do very
well, but most of these golfers are
going to remain players of modest skill.
Indeed this raises another question, :
“What expectations should therapists
have of their clients?” The ISA has also
looked at this question and ratified a
Bill of Rights and Responsibilities for
People Who Stutter. The general concept
is one of individual rights for the
person who stutters. In other words some
may choose to live with their stuttering
while others may work at overcoming it
–the path is for each individual to
decide. But with either path the word
disability remains. Stuttering can be
seen as a disability to be lived with,
or as a disability to be overcome.
| * |
This is an
invited article for the ASHA
Leader magazine and was
given the status of Guest
Editorial. |
Oct27, 2005
AFRICAN CONFERENCE and
INTERNATIONAL SPEECH PROJECT
Report by Mark Irwin (ISA Board Chair)
October 27, 2005
History:
In February 2004 at the World Congress
of PWS held in Perth Australia, David
Shapiro and Peggy Wahlhaus discussed
with me their idea of collaboration with
the ISA to develop a program for
bringing stuttering therapy to the
developing world. A model for this
initiative was the internationally
recognized “Medicines Sans Frontieres”
(Doctors Without Borders). Stefan
Hoffman as ISA Outreach Committee chair
was later involved in these discussions
and it was decided to pursue this idea
further.
There was a meeting in Perth and later
group email discussions where it was
decided to name the program
–International Speech Project –Stuttering (ISP-S).
The rationale was if funding was to be
secured and recognition achieved then
the project had to have a broader appeal
than simply stuttering therapy. It was
decided it would be more likely to be
favourably received by potential donors
if the program related to provision of
general speech therapy services.
Once this decision was made other issues
were its structure and where and how to
launch the project. Stefan Hoffman,
Moussa Dao, Joseph Lukong and I
collaborated to initiate an inaugural
African Stuttering Conference in Douala
Cameroon from 6th-8th October 2005,
thinking that this conference would
provide an opportunity to gain insights
into needs and fund raising
possibilities. This background
information would enable effective
future planning and make Douala the
obvious place to launch ISP –S.
Attendees
From inside Africa there were delegates
from 14 different African countries. Of
course the main group came from
Cameroon.
From outside Africa the conference was
supported by speech pathologists
Anne-Marie Simon from France,
experienced in work in Africa, two of
her colleagues Sylvie Brignone and
Cecile Couvignou, as well as David
Shapiro (USA) and Suzanna Rosenberger
(Germany). In addition psychologist
Peter Howell (England), geneticist Radha
Upphala (India) and teacher Isobel Quick
(Australia) also made conference
presentations.
Promotion
Anne Marie Simon was a key person in
promotion of the event throughout
Africa. She had many contacts as a
result of previous work there. In
addition others heard of it through her
interviews on Radio France
Internationale. Joseph Lukong liaised
with me to produce a conference brochure
and later worked tirelessly
communicating via email with potential
delegates from all over Africa, as well
as creating media awareness in Cameroon.
Finance
The ISA took up the challenge to
financially manage the event. It sought
funds from recognized aid agencies,
embassies and churches without success
but was successful in obtaining private
donations directly and through
affiliated member associations.
Originally it was hoped that fund
raising could be arranged to fully
support travel, accommodation and meals
for one delegate from each African
country. In the end budgetary
constraints meant we could only offer
50% air fare while fully supporting
accommodation and meals. Delegates from
21 African countries were involved in
discussions about attendance. Of these,
delegates from 14 countries attended.
Distribution of scholarship money raised
by the ISA was managed in Douala by
myself, Joseph Lukong and Moussa Dao,
after telephone and email links to ISA
treasurer Hermann Christmann of Denmark.
Aims of Conference
• Give information about stuttering.
• Give stuttering therapy.
• Give information about development of
self-help groups
• Gain information about situation for
PWS in Africa
• Gain information about situation for
therapists in Africa
• Gain information for fund raising
possibilities
• Launch International Speech Project
-Stuttering
Information Given
• Information was given to delegates via
conference presentations by all the
speech pathologists and by psychologist
Peter Howell, geneticist Radha Upphala
and teacher Isobel Quick. The general
public was informed through numerous
radio and television interviews. Credit
must go to Joseph Lukong for publicizing
the event so widely in Douala and
ensuring such widespread media coverage.
(Anytime I was interviewed, including a
segment on the 7.00 TV news, my message
was for the general public to understand
stuttering is a disability that can be
managed to varying levels depending on
age, severity and support. The message
for pws was to come out, not to be
anxious, embarrassed or ashamed of their
stuttering and join a support group as a
means of helping themselves.
• Stuttering therapy was provided to the
delegates in preconference work shops
conducted by Anne Marie Simon and David
Shapiro
• I gave a presentation on stuttering
self-help groups –how to make them work
to ensure they remain dynamic and open.
Information gained
• Generally the situation in Africa for
PWS is poor due to a lack of
understanding and use of ineffective and
physically harmful treatment techniques.
Examples included a report from Salad
from Kenya on how he was beaten
vigorously on the back with a sheep’s
lung as a treatment method. Joseph
Nsubuga from Uganda reported incidents
where children who stuttered had been
killed in the belief they were possessed
by evil spirits.
• Belief in witchcraft is still
prominent in Africa and the local
witchdoctor/ faith healer is used as a
therapy source. Western style therapy
exists to varying extents. Recognized
speech therapy qualifications are
available in South Africa and Togo. The
Togo training institution has received
funding from Handicap International and
students receive specialist training in
stuttering therapy from Anne Marie
Simon. Other people have done what can
best be described as auxiliary training
either in France or in South Africa.
Elsewhere psychologists treat
stuttering. Sami Yasin from Sudan
reported that speech therapists are
unknown in his country.
• There are many international aid
organizations, churches and embassies
providing assistance in Africa.
Unfortunately none of those approached
by the ISA or by the Clear Speech
Association of Cameroon were able to
help.
Launch of International Speech
Project –Stuttering
After consideration of input from
numerous sources the ISP –S was launched
with a general concept of developing
self-help groups to liaise with
specialist speech pathologists to
provide information to PWS and the
general public. In addition the
specialist SLP’s would provide
postgraduate education to African
“speech pathologists” and psychologists.
Another priority was to lobby African
governments to provide training for
French and English speaking students in
the established facilities in Togo and
South Africa respectively. Later
perhaps, when enough speech therapists
in various African countries had been
trained it might be possible to develop
local education facilities staffed by
people previously trained in Togo or
South Africa. A development board will
be established to manage practical
implementation of these ideas.
Summary
The delegates indicated that they very
much valued the opportunity to build
networks with other PWS and experts from
within their own countries, from Africa,
and from other countries in the world.
Judging by the number of contact details
exchanged this will be only the start of
the ongoing development of a supportive
network of people with a commitment to
improving the situation for PWS in
Africa.
Expert information was shared in a two
way process and knowledge deepened. From
this we can expect the development of
more self-help groups in Africa plus the
provision of more effective therapy and
training services. In addition a
foundation has been set for ISP-S so
that essential information and effective
stuttering therapy might soon be bought
to all people of the developing world.
Thanks are due to everyone involved in
this historic event. A huge splash was
made in the pond of stuttering awareness
and understanding. The ripple effect
from this splash will further develop
the ISA mission of a world that
understands stuttering.
Finally as a visitor to Africa I found
the hospitality shown by the local
delegates to be outstanding, and would
encourage others to participate in any
future conferences.
Photos from the African conference may
be seen on Photo Gallery.
Jul 17, 2004
2004 World Congress for
People Who Stutter
Fluency and Beyond: A
Holistic Look at Stuttering
Hosted by the Australian Speak Easy
Association
Perth, Australia
Peter Dhu, Congress Convenor
February 15-20, 2004
Over 350 delegates
attended the 2004 World Congress at the
Esplanade Hotel in Fremantle, Western
Australia. Of the people who
registered there were 100 International
delegates from 26 Nations, over 100 from
the state of Western Australia,
and an additional 100 from the other
states of Australia. Many of these
delegates were able to attend through
scholarships offered by the ASEA and the
ISA.
The Congress Programme
Committee invited speakers from many
nations to represent the wide cross
section of treatment philosophies
throughout the world. The programme was
extremely comprehensive and offered
many plenary sessions and workshops.
These workshops and sessions were often
led by People Who Stutter and were in
the theme of a “holistic look at
stuttering” In addition, social
functions included a welcoming party by
the Esplanade Hotel Pool and a closing
function over the water at the Fremantle
Sailing Club. To acquaint the delegates
with Western Australia, tours were
offered before and after the Congress.
Two sentiments expressed
by delegates, which represented the
views of many, were : “I came just
looking for fluency but will leave with
so much more.” AND “Even though I
was in a foreign country I felt at
home.”
A special thanks goes to
Peter Dhu and his planning committee for
all their work in the past four years to
make the 2004 Congress a great success.
Also, many thanks to West Australian
Speak Easy who was able to raise $25,000
through sausage sizzles, raffles,
chocolate drives, Entertainment Book
sales, BBQ’s etc. to help with the
expenses of the Congress and to supply
scholarship money. Finally, many thanks
to Dr. Mark Irwin, Chairman of ISA for
his work as Chair of the Programme
Committee.
Jan 30, 2002
Open Letter:
Negative feedback on Harry Potter movie
We are presenting
here an OPEN LETTER obtained from Annie
Bradberry - ISA secretary and refined
by Mark Irwin - ISA chair on Harry
Potter movie.
ISA member associations are kindly
requested to alter it as required and
send it on their letterhead to as many
newspapers in their country as possible.
(through their regional groups?)
To editor of ………………….
Newspaper
I wish to draw to your
attention negative feedback
our association has received from
parents and children who have seen the
current movie "Harry Potter and
the Sorcerer's Stone".
Accordingly I wish the following letter
to be published in your newspaper.
Further information can
be obtained from the International
Stuttering Association through its
spokes person Jaan Pill of Canada (jpill@interlog.com) and web site
http:www.stutterisa.org
OPEN LETTER to
J.K. Rowling (Author of Harry Potter
stories)
Dear Ms Rowling;
The Harry Potter books,
and now the first Harry Potter movie,
are enchanting millions of children.
Children who stutter, however, are
coming away from the movie hurt,
humiliated and angry because of the
portrayal of the stuttering Professor
Quirrell.
Professor Quirrell is a
weak character whose stutter marks him
as ineffectual, insecure and harmless.
It's the oldest stereotype around and
it's completely false. It's particularly
disappointing to see an otherwise
imaginative work as "Harry Potter and
the Sorcerer's Stone" cut corners with
this hackneyed formula.
Stuttering is not an
emotional problem or nervous disorder.
Current research suggests a connection
between stuttering and neurological
coordination of the speech mechanism.
For children struggling to come to terms
with their stuttering, this common
misunderstanding -- that stuttering is a
symptom of emotional problems or
weakness of character -- is a source of
daily frustration.
Harry Potter is not the
first book or movie to portray people
who stutter negatively, of course. Most
adults who stutter have developed a
thick skin about this kind of prejudice,
but children are especially vulnerable.
The presence of this hurtful stereotype
in a popular movie means that children
who stutter will be teased by kids and
misunderstood by adults more than ever.
The National Stuttering Association
began getting calls from parents shortly
after the Harry Potter movie was
released and we expect many more as the
movie runs its course.
I am sure you did not
intend to hurt children who stutter when
you wrote the book. But wouldn't it have
been great if the power of this magical
story had been used to promote
understanding of kids who are different
instead of perpetuating a false
stereotype? We hope you will consider
using stuttering in a future Harry
Potter book to make one of your
characters more interesting and
realistic.
Sincerely,
Signature
Insert Name
(On behalf of (insert your
organization's name) and the
International Stuttering Association)
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